The Long-Term Care Data Cooperative: Developing Groundbreaking Research with Nursing Home EHR Data
-
Register
- Non-Member - Free!
- Comp Member - Free!
- Emeritus Member - Free!
- Regular Member - Free!
- Retired Member - Free!
- Spouse Member - Free!
- GSA Staff - Free!
- Transitional Member - Free!
- Graduate Student/Post-Doc Member - Free!
- Undergraduate Student Member - Free!
The Long-Term Care Data Cooperative is funded by the National Institute of Aging and aims to improve the quality of care within skilled nursing facilities by compiling the most comprehensive electronic health records data on nursing home residents nationwide. These data can be linked to Medicare claims and currently include over 2.3 million unique residents in 2200 nursing homes. Through a dynamic, interactive workshop, attendees will learn how the LTC Data Cooperative is generating real-world evidence on treatments and care practices; access and explore sample data; gain a comprehensive understanding of the core data model; and learn how to request access for research purposes.
Amy Recker, MPH
Project Director
Brown University School of Public Health
Amy Recker, MPH, is a project director in the Center for Long-Term Care Quality & Innovation at the Brown University School of Public Health. She directs project management for a portfolio of research projects focused in long-term care, including the Long-Term Care Data Cooperative. Her background as an epidemiologist for both the Illinois and Massachusetts Departments of Public Health has been focused on long-term care, emerging healthcare-associated infections, and multi-drug resistant organisms. During her time in Illinois, she worked on managing the emerging Candida auris epidemic spreading through skilled nursing facilities. In Massachusetts, she served as an epidemiologist on the long-term care team during the COVID-19 pandemic. She received her Master’s in Public Health, with a joint concentration in epidemiology and biostatistics, from the University of Southern California.
Stephanie Kissam, MPH
Executive Director, Long-Term Care Data Cooperative
American Health Care Association
Stephanie M. Kissam is the Executive Director of the Long-Term Care Data Cooperative, one component of the NIA IMPACT Collaboratory and governed by the American Health Care Association (AHCA). In this role, she supports the core mission of using electronic health record data assembled in the LTC Data Cooperative for health care improvement, public health surveillance, and comparative effectiveness and clinical trials research. She has over 20 years of leadership in public health program development, research, and management, including as a Program Director at RTI International, where she led large national evaluation projects for the Center for Medicare and Medicaid Innovation and the Administration for Community Living. Her areas of research include health IT implementation, nursing home quality measure development and maintenance, value-based payment models, and state health policy.
Vincent Mor, PhD
Professor of Health Services, Policy & Practice and the Florence Pirce Grant University Health
Brown University School of Public Health
Vincent Mor has been principal investigator of 40+ NIH-funded grants focusing on use of health services and outcomes of frail and chronically ill people evaluating the impact of programs and policies including Medicare funding of hospice, changes in Medicare nursing home payment, and the introduction of nursing home quality measures. He co-authored the Congressionally-mandated MDS and was architect of an integrated Medicare claims and clinical assessment data structure used for policy analysis, pharmaco-epidemiology and population outcome measurement. Dr. Mor developed summary measures using MDS data to characterize residents’ physical, cognitive and psycho-social functioning. These data resources are the heart of Dr. Mor’s NIA- funded Program Project Grant, “Changing Long Term Care in America,” which examines the impact of Medicaid and Medicare policies on long-term care. These data are also at the core of a series of large, pragmatic cluster randomized trials of novel nursing home-based interventions led by Dr. Mor.
Susan Siford, PharmD, MBA
Senior Research Development
Acumen, LLC
As a Senior Research Director, Dr. Siford has leveraged her clinical background to provide subject matter expertise on a variety of Acumen projects. Transitioning into a leadership role, my project work has allowed me to develop special expertise in handling large datasets to evaluate healthcare utilization and spending, patient interventions, health outcomes, and payment policies. Currently, she works closely with Long-Term Care Data Cooperative (LTCDC) to procure and develop current and historical electronic health records for residents in more than 3,000 skilled nursing facilities and 800 assisted living facilities across the United States. In addition to leading the LTCDC Core Data Model, Dr. Siford serves as Project Director for the NIA Data LINKAGE Program which links NIA-funded study data to CMS data. Upon execution of required data use agreements, researchers can access this linked data within the LINKAGE enclave.
Betsy White, APRN, PhD
Assistant Professor of Health Services, Policy & Practice
Brown University
Elizabeth (Betsy) White, APRN, PhD, is an Assistant Professor of Health Services, Policy, and Practice at the Brown University School of Public Health. Her research agenda broadly focuses on understanding how frail medically-complex older adults receive healthcare services, and how factors affecting the nursing and primary care workforces impact quality outcomes in long-term care. During the COVID-19 pandemic she assisted in the construction of large data systems of nursing home electronic health records to examine various aspects of COVID-19 management, treatment, and outcomes among nursing home residents and staff. Dr. White completed an AHRQ T32 postdoctoral fellowship at Brown in the Center for Gerontology and Healthcare Research, and an NINR T32 predoctoral fellowship in the Center for Health Outcomes and Policy Research at the University of Pennsylvania School of Nursing. In addition to her research, Dr. White is a board-certified adult geriatric primary care nurse practitioner.