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25 Years of the Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE) Study – History, Current Use, and Accessing the Data

25 Years of the Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE) Study – History, Current Use, and Accessing the Data

Recorded On: 10/23/2024

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The Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE) study is a longitudinal, multi-site, randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The study includes measures of cognitively demanding daily activities, cognitive functioning, daily functioning, health care and service utilization, driving habits, and mobility. Recently, ACTIVE joined NIA’s Data LINKAGE program to link study data with CMS, and an NIA R01AG056486 supported passive follow-up through 2019 to enable researchers to continue tracking outcomes for the respondents to this unique study. This webinar will highlight the ACTIVE study data and the rich resources available to the research community. Presenters will discuss the history and goals of the study, how it has been used in research, and how the linked files offer new research opportunities. The webinar will also review how interested researchers can gain access to these data for independent projects. This webinar is intended for secondary data users and researchers at all skill levels.

Kathryn Lavender (Moderator)

NACDA Data Project Manager

ICPSR, NACDA

Kathryn joined the NACDA team in November 2017 as project manager. She is involved with day to day operations including data deposits, restricted-use data agreements, data user requests, as well as long term planning of NACDA activities in the research community. Kathryn has been an ICPSR staff member for over 15 years.

Karlene Ball, PhD

University Professor

University of Alabama at Birmingham


Karlene Ball is a University Professor and Endowed Chair in Developmental Psychology at UAB. Dr. Ball received her Ph.D. in experimental psychology from Northwestern University in 1979. She is currently Directs the UAB Core for Research on Applied Gerontology; has chaired the Human Factors and Ergonomics Society Technical Group on Aging and the Transportation Research Board Committee on the Safe Mobility of Older Persons, and serves on expert panels that set the standards for commercial and older drivers. She has authored numerous publications on visual, attentional, and cognitive changes with age, as well as on the identification of at-risk older drivers. She received a M.E.R.I.T. award from the National Institutes of Health for her basic research program on the everyday activity problems of older adults and the development of new interventions to prevent, slow, or reverse age-related declines. Her work has been successfully translated into practice in many settings.

Olivio Clay, PhD

Professor of Psychology

University of Alabama at Birmingham

Olivio J. Clay, PhD is a tenured, Full Professor of Psychology at the University of Alabama at Birmingham (UAB). The overall focus of his research is to aid in developing theory-based, culturally relevant interventions targeted to promote health equity across the life course. His research interests include caregiving and examining how social determinants of health affect an individual’s longitudinal outcomes and risk for Alzheimer’s disease and other related dementias (ADRD). He serves as the Director of C.L.A.Y.S. (a Comprehensive Life course approach to Aging Yields Success) Lab where he mentors undergrads, graduate students, and junior faculty. Dr. Clay is the Director of the Applied Developmental Psychology doctoral program at UAB, directs the Analysis Core of the Deep South Resource Center for Minority Aging Research (RCMAR), and directs the Outreach, Recruitment & Engagement (ORE) Core of the UAB Alzheimer’s Disease Research Center (ADRC).

Katherine Miller, PhD

Assistant Professor

Johns Hopkins Bloomberg School of Public Health

Katherine Miller, PhD, applies an economic lens to research at the intersection of aging and health policy evaluation. She is interested in understanding how public policies impact the long-term care workforce and the people with complex medical needs for whom they care. Collectively, her work examines the effects of policies and interventions on outcomes of the workforce (e.g., wages of the paid caregivers and well-beings of unpaid/family caregivers); the mechanisms impacting quality of care (e.g., turnover); and, patient outcomes across the spectrum of long-term care settings.

Alden Gross, PhD, MHS

Associate Professor

Johns Hopkins Bloomberg School of Public Health

Alden Gross is a psychiatric epidemiologist in the Department of Epidemiology at the Johns Hopkins Bloomberg School of Public Health (JHSPH) with a substantive research interest in cognitive aging and mental health. Dr. Gross maintains a strong methodological background, with specialized training in statistical methods including multilevel modeling, clinical trials, methods for accounting for missing data, structural equation modeling, and latent variable methods. In particular, he has conducted extensive psychometric work on the harmonization of cognitive performance data in older adults. His substantive areas of research are cognition and everyday function among older adults, and he has published important substantive and methodological research in gerontology using experimental psychological, neuropsychological, psychometric, and epidemiological perspectives in cognitive aging.

Melissa Treviño, PhD

Program Director

National Institute on Aging

Dr. Melissa Treviño is a program director in the Individual Behavioral Processes Branch within the Division of Behavioral and Social Research at the National Institute on Aging (NIA). Dr. Treviño manages the cognitive aging and non-pharmacological interventions grant portfolio. Research in this portfolio includes experimental and laboratory investigations of cognitive aging as well as longitudinal studies of cognitive aging, cognitive resilience, cognitive decline, mild cognitive impairment (MCI), and Alzheimer's Disease and Alzheimer's Disease Related Dementias (AD/ADRD) that examine the impact of stress, personality, early adversity, and other aspects of life histories and social exposures on cognitive trajectories. Dr. Treviño completed a postdoctoral fellowship at the National Cancer Institute and received her Ph.D. in Cognitive Psychology from the University of Houston.

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